We provide holistic and supported care for all adult patients living with Epidermolysis Bullosa. This includes a transition program from the Royal Children’s Hospital where some of our staff also work.
Key points
- Holistic and supported care for all adult patients living with Epidermolysis Bullosa
- Epidermolysis Bullosa Nurse Clinical Consultant to assist with EB dressing scheme and coordination of care
- Multidisciplinary Clinic including podiatry, pain management, gastroenterology, nutritional support, genetic counselling, palliative care, comprehensive skin checking, plastic surgery
- This clinic operates on Thursdays from the RMH Parkville site
What we do
We are generously supported by and work closely with DEBRA Australia.
Our services
- Comprehensive skin checking for squamous cell carcinoma
- Plastic Surgery
- Nutritional monitoring
- Podiatry
- Pain management
- Gastroenterology
- Genetic counselling
- Palliative Care
- Assistance with access to the EB Dressing Scheme and NDIS
Our service also includes nursing support from our expert Nurse Clinical Consultants to select and access the best dressings for our patients' needs.
Our nurses will also help our patients to navigate the hospital environment, including inpatient care when needed.
Dermatology research
Our Dermatology Research Department participates in trials related to Epidermolysis Bullosa and we have close links with the surrounding research institutes and those overseas working on new treatments for this challenging disease.
See our current dermatology clinical trials and research studies.
Referrals
We accept GP and specialist referrals:
- Use the RMH referral form or a template from your own system
- Complete and fax your referral to Specialist Clinics (Outpatients) on (03) 9342 4234
We do not accept email referrals.
What to include in your referral
As outlined by the Department of Health, referral requests should include:
- Patient demographic information
- Referrer demographic information
- Reason for referral
- Presenting problem
- Service(s) requested
- Required referral information specified by statewide or local referral criteria
- Current patient management
- Impact of the problem on the patient
- Name of the consultant and provider number (for Medicare clinics)
- Investigation reports related to the referral
Urgent and after-hours support
Referrals are triaged based on priority. In an emergency, patients can go to the Emergency & Trauma Service at any time.
For advice, urgent referrals and out of hours support, call The RMH Switchboard on (03) 9342 7000 to page our registrar on call.
HealthPathways Melbourne provides guidance on best practice assessment and management of common medical conditions, including when and where to refer patients.
Parkville Connect is a secure web-based portal providing GPs, specialists and other health professionals with information in the Parkville electronic medical record (EMR).
Need to change or cancel your appointment?
Do one of the following:
- Access Health Hub to change the appointment yourself
- Complete our online form and we'll change it for you
- Call Specialist Clinics (Outpatients) on (03) 9342 7393 and we'll help you over the phone
Interpreters and cultural support
We provide qualified, professional interpreters to help you communicate with us at any time during your stay and at your clinic appointments.
- Μάθετε περισότερα γιά διερμηνείς & υποστήριξη κουλτούρας
- Scopri di più sugli interpreti e sul supporto culturale
- Tercümanlar ve kültürel destek hakkında daha fazla bilgi edinmek için
- Tìm hiểu thêm về thông dịch viên và hỗ trợ văn hóa
- 找出更多翻译与文化支持的信息
- لمزيدٍ من المعلومات عن خدمة الترجمة الشفهية والخدمات الثقافية
300 Grattan St, Parkville, Victoria